I’m posting this here because I think it might be useful to someone. As I may have mentioned before, Fibromyalgia is strongly linked to PTSD and in my case I’ve come to accept that it’s true. I’ve posted this elsewhere very privately to a few friends. This is the first time most of this will [...]
Posts Tagged ‘fibro’
Rheumatology and Other Things that Go Bump in the Night
Posted in daily life, doctors, family, ptsd, tagged fibro, flare, ptsd, trigger on April 23, 2008 | 2 Comments »
if it’s not one thing it’s another
Posted in daily life, tagged edema, fibro, pain, pms on March 3, 2008 | Leave a Comment »
It’s been a day. And a half. I’ve been having trouble with routers and telephone service, and networking issues, and I’ve spent much of today trying to figure those out, as well as edit an old contract to make it fit with the way real people do business these days… and then came the communist [...]
the white rabbit…
Posted in arthritis, doctors, fatigue, tagged daily grind, doctors, fatigue, fibro, fog, pain on February 26, 2008 | Leave a Comment »
I’m late, again, but I’m not nearly so excitable about it as the White Rabbit was.
I’ve been having more and more difficulty concentrating lately. Part of it was the extreme levels of clutter in the house, part of it was the higher levels of fatigue. I haven’t done much today. The last few days even [...]
it’s a day
Posted in daily life, fatigue, fibro, tagged daily grind, fatigue, fibro, flare, fog on February 18, 2008 | Leave a Comment »
My tags are alliterative today.
I slept reasonably well last night, though the last 3 or 4 of hours were difficult. Every hour or so, I kept waking up and having to sit up and stretch out my muscles before I could go back to sleep again. Thankfully, I could go back to sleep.
Sleep is a [...]
you lucky things
Posted in daily life, fog, tagged daily grind, family, fibro, fog on February 16, 2008 | Leave a Comment »
Aren’t you pleased? This one is going to be short.
I had the stupid all day. The fog was thick enough to cut, but I wouldn’t have trusted myself with a knife. A client called and asked me for a time estimate on a project and I couldn’t answer the question. I had to apologize and [...]
it’s all about the pretense
Posted in daily life, lessons, tagged daily grind, fibro, fog, lessons, migraine on February 12, 2008 | Leave a Comment »
To start with, we’re pretending that I posted this last night. I even changed the timestamp. Oh, the power.
I moved furniture on Tuesday evening. I couldn’t stand it anymore. Rather than starting logically, by putting away the laundry and picking up the toys and books, because logical means that nothing gets done. Ever. I just [...]
turtling along
Posted in daily life, fibro, tagged arthritis, daily grind, family, fibro, work on February 12, 2008 | Leave a Comment »
One of the ways the first doctor told me they determine the difference between fibromyalgia and arthritis is how long it takes you to function in the morning. Less than an hour, fibro; more than an hour, arthritis.
He also asked about my evenings. At about 4 o’clock, my brain shuts down and I start getting [...]
who are you again?
Posted in fatigue, fibro, tagged fibro, mental health, myths on February 7, 2008 | Leave a Comment »
I don’t like to talk about the fibro even more than I don’t like to talk about the arthritis. I just don’t get the fibro. What the hell is it? It’s defined by what it’s not. It’s not lupus. It’s not MS. It’s not… It’s not.. so it must be fibro.
The doctor who originally described [...]
welcome to the grind
Posted in arthritis, community, doctors, family, fibro, mental health, tagged arthritis, community, doctors, fibro, health, introduction, mental health, pain, psoriasis, the grind on February 3, 2008 | Leave a Comment »
This is the short introduction. Really.
It’s been impressed on me that I need to keep better track of the pain I experience, where, when, how often, etc. I’ve also been told that some people find knowing about it validating. “That’s my pain!” makes us feel less isolated. It’s not all in my head after all! [...]
painmap2.3
Posted in painmap, tagged arthritis, fibro, migraine, painmap on February 3, 2008 | Leave a Comment »
painmap2.3
Originally uploaded by grinding
This is my pain map for this evening, February 3, 2008.
Pain levels overall today: High
Extras for the day: Migraine, moderate, 10 hours
mapping the grind
pebbles and sand
all the little pebbles
grinding away
